patientslikeme
Posted on March 23, 2008, 2:06 pmby admin
best video: patientslikeme
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No warning, no preparation The Doctor??s word hung dead in the air you have ???Parkinson??s disease PD??? . I had no idea about what he was talking about. And the doctor kept silent- that was the beginning of my journey that I have traveled for the past of three years????.. Why are we unfairly treated?Lord is not treated us fairly? Teokimhoe You may not like my philosophy or my belief what ever you may want to call it but read it or not. I do feel sorry for you and many others that feel it is unfair
heroteo.ikonxept.com
easter google.com
sleepy hollow bank
fbi most wanted poster
on your mark
numb 2007 torrent
midnight oil beds are burning lyrics meaning
set it off
Do you agree that Parkinson??s progression with time? Despite there are new medications i.e one, second and third lines for Parkinson??s treatment there are still no way to stop it??s progression with time. Is it a shame for the medical world? I agree that PD does progress with time, with a disclaimer. If one does nothing but take the meds, and essentially ???gives in?? PD will progress much faster. If one exercises, eats well balanced meals, keeps a positive attitude and takes the meds, it will no
heroteo.ikonxept.com
For the second straight year, I attended the South By Southwest Interactive SXSWi festival. This trip was much different than the last for many reasons. Last year, I must admit, the main goal was getting my name out there so I could find a position doing more SXSW-y type things. This year, I??ve got that gig. I was there to network, learn, and spread the word about our product, BatchBook. Last year, I dragged my laptop and camera everywhere, blogging like crazy. This year, I carried an iPho
www.darowski.com
There was DanceJam, for dance enthusiasts DietTV for dieters Ideeli for luxury shopping deals Mixaloo for music fans Patientslikeme for the terminally ...
www.news.com
Giving and serving others will bring much happiness than receiving and being served. Therefore there is still life after PD. You will no longer be alone. Absolutely correct Teo. I have found this to be true in my own life. It is pure wisdom taught by Jesus, Buddha, Krishna, etc. etc.???This is my commandment that you love one another as I have loved you???.Jack jack very well put?? I am learning not to always think of me and where I am at with PD, but to be thinking of others and what they need
heroteo.ikonxept.com
Tomorrow??s New York Times Magazine has a story I wrote on PatientsLikeMe, the innovative patient community. The company, I believe, is doing some powerful things: 1 It??s making a bold call for Openness with our medical and health information, arguing that this information is more powerful out and shared and aggregated than locked up and protected. 2 It is an emerging research tool, allowing patients to gather together and consolidate their sometimes anecdotal subjective experience with d
epidemix.org
There was DanceJam, for dance enthusiasts DietTV for dieters Ideeli for luxury shopping deals Mixaloo for music fans Patientslikeme for the terminally ...
www.news.com
1. 30 startups are presented at Health 2.0 conference. See it 2. VentureBeat on March 6, 2008 introduces ???six startups with some big, and very different, ideas for reinventing the doctor-patient relationship ?? everything from making it deeper and more convenient to practically doing away with it altogether.??? 2.1. Myca have re-envisioned the display of medical records for the digital age. ???The whole point of the interface is to show you exactly what??s going on,??? says Jay Parkinson, a young New
www.unitedbit.com
Thomas Goetz, deputy editor of Wired magazine and contributor to the New York Times Magazine, discusses his article ???Practicing Patients??? about the issues raised by the website PatientsLikeMe for people dealing with chronic illnesses. The piece will appear in the 3/23 issue of the magazine.
www.wnyc.org
From the always perceptive Paul Gillin: Social Network Wars are Over. If you??re sitting on the sidelines waiting for the market to pick winners in the social network race, you can stand up now. Hitwise data for 2007 shows that MySpace and Facebook together accounted for 88% of all visits to social network sites. The next closest competitor, Bebo , got a little more than 1% of the traffic. There simply is no more competition in the general-purpose social network market. Other social m
www.socialmedia.biz
Sunday, March 9, 2008 I have never met a braver person in my life????????.and that includes my dad as he battled PD and pulmonary problems. My heart goes out to you my arms would love to hold you and take away some of your inner grief my prayers are for you my hope is for the rest of your life to be peaceful and happy. May I use your story as an educational tool for our ??speading awareness??? If your story does not explain what PD is and how it affects our lives, there is no explanation. I KNOW h
heroteo.ikonxept.com
A new social networking site looks a lot like Myspace, but is specifically designed for people suffering from major medical problems. I found the site, patientslikeme.com, after reading an article critiquing the site, by New York Times writer, Thomas Goetz. Goetz writes about one man suffering from MS who used the site to see what kinds of treatments other MS patients were taking and in doing so found out that something his doctor told him about the maximum dosage of a drug he was taking, may n
psychcentral.com
The researchers are working very hard to find a cure. The people in the US are petitioning for more allocation for research. PD shall have a cure. The day may not too far away? It is not dream but soon will be a reality.But when? I believe you are right and we can not and should not give up. Mark this post as helpful Yes, I can smell it right around the corner. Thanks to orgs. like PLM and MJFF.Jack There is no better time so far since PD was named and discovered to have PD if you have to
heroteo.ikonxept.com
Small would have continued just as he was had he not logged on last June to a Web site called PatientsLikeMe. He expected the sort of online community he??d ...
www.nytimes.com
A new social networking site looks a lot like Myspace, but is specifically designed for people suffering from major medical problems. I found the site, patientslikeme.com, after reading an article critiquing the site, by New York Times writer, Thomas Goetz. Goetz writes about one man suffering from MS who used the site to see what kinds of treatments other MS patients were taking and in doing so found out that something his doctor told him about the maximum dosage of a drug he was taking, may n
psychcentral.com
PatientsLikeMe, an Internet start-up, creates information-rich communities for the chronically ill. Is it the next step forward in medical science ? or just a MySpace for the afflicted? More...
www.featherish.com
Small would have continued just as he was had he not logged on last June to a Web site called PatientsLikeMe. He expected the sort of online community he??d ...
www.starnewsonline.com
Despite vast improvement in PD treatment there are many reasons that some patients are still plain ignorance. They consider PD to be ???no hope??? illnessand whither away slowly. they lack of fighting spirit born fighter as they cannot accept the fact they cannot live a normal life as other healthy people. They feel embarrassed and isolate themselves from the community as some people in the society regards PD as being??? crippled???. I don??t think it is fair to say people lack a fighting spirit or
heroteo.ikonxept.com
But PatientsLikeMe seeks to go a mile deeper than health-information sites like WebMD or online support groups like Daily Strength. The members of PatientsLikeMe don??t just share their experiences anecdotally they quantify them, breaking down their symptoms and treatments into hard data. They note what hurts, where and for how long. They list their drugs and dosages and score how well they alleviate their symptoms. All this gets compiled over time, aggregated and crunched into tidy bar graphs
davidrothman.net
Parkinson is an old disease since eighteen century.Why parkinson??s disease is still a subject to discuss? Why a sudden surge of interest and publicity in the world? this post was last edited by teokimhoe on Jan 24, 2008 07:09AM It seems like more and more people for whatever reason are getting this crazy disease, and it is about time we start to get some attention like other diseases such as breast cancer so that we too can get funding for research??Shoot I don??t think we get half the attenti
heroteo.ikonxept.com
Hi Teo Kim Hoe, Thank you for contacting PatientsLikeMe! We greatly appreciate the compliment and truly hope that you find the site beneficial. If you ever have any questions or if there??s anything we can do for you, please let us know. We??ll be more than happy to help, and we thank you for being here.Sincerely,Sharry and the PatientsLikeMe Team On Mar 07, 2008, Teo Kim Hoe <tkh1234streamyx.com> wrote:> > > ?The best media to express how the PD affecting your lifestlye and co
heroteo.ikonxept.com
Some patients leave their PD to the doctors and drugs for treatment. Is it the cure of drug the beginning or the end of life? hummm an interesting question and a good one like quality vers quanity.. i guess there is really no right or wrong answer just a personl perference. so what do i think?? i think that sometimes the drugs can make one worse or even lead to deaths. espicallly if u have more than one dr and one dr does not know what the other has scribed and they start to interact and on
heroteo.ikonxept.com
If you??re sitting on the sidelines waiting for the market to pick winners in the social network race, you can stand up now. Hitwise data for 2007 shows that MySpace and Facebook together accounted for 88% of all visits to social network sites. The next closest competitor, Bebo , got a little more than 1% of the traffic. There simply is no more competition in the general-purpose social network market. Other social media winners include LinkedIn which wasn??t included in the Hitwise data, YouTu
www.paulgillin.com
skip to main skip to side Sunday, March 9, 20 There are 15% of PD patients who are diagnosed to have PD before the age of 40 years, some of them still be single. Therefore marriage is a very delicate issue in PD. It is a tough decision to make. Teo, the perspective on marriage is very cultural and very complex. It is not clear if you are referring to sexual problems or the need to be cared for physically. Neither should be a hindrance if two people are truly in love. It is true they
heroteo.ikonxept.com
 |
easter music midi
cooking lamb roast
grave of the fireflies imdb
sandy shaw murder
history of easter island
sandy shaw sympathy for the devil
walk hard dvd release
download hot About a Boy videos
Life just a long sentence?
No warning, no preparation The Doctor??s word hung dead in the air you have ???Parkinson??s disease PD??? . I had no idea about what he was talking about. And the doctor kept silent- that was the beginning of my journey that I have traveled for the past of three years????.. Why are we unfairly treated?Lord is not treated us fairly? Teokimhoe You may not like my philosophy or my belief what ever you may want to call it but read it or not. I do feel sorry for you and many others that feel it is unfair
heroteo.ikonxept.com
easter google.com
sleepy hollow bank
fbi most wanted poster
on your mark
numb 2007 torrent
midnight oil beds are burning lyrics meaning
set it off
Is it a shame for the medical world?
Do you agree that Parkinson??s progression with time? Despite there are new medications i.e one, second and third lines for Parkinson??s treatment there are still no way to stop it??s progression with time. Is it a shame for the medical world? I agree that PD does progress with time, with a disclaimer. If one does nothing but take the meds, and essentially ???gives in?? PD will progress much faster. If one exercises, eats well balanced meals, keeps a positive attitude and takes the meds, it will no
heroteo.ikonxept.com
SXSWi 2008: A Recap
For the second straight year, I attended the South By Southwest Interactive SXSWi festival. This trip was much different than the last for many reasons. Last year, I must admit, the main goal was getting my name out there so I could find a position doing more SXSW-y type things. This year, I??ve got that gig. I was there to network, learn, and spread the word about our product, BatchBook. Last year, I dragged my laptop and camera everywhere, blogging like crazy. This year, I carried an iPho
www.darowski.com
VC confab: Please, no more social networks - CNET News.com
There was DanceJam, for dance enthusiasts DietTV for dieters Ideeli for luxury shopping deals Mixaloo for music fans Patientslikeme for the terminally ...
www.news.com
Is there still life after PD?
Giving and serving others will bring much happiness than receiving and being served. Therefore there is still life after PD. You will no longer be alone. Absolutely correct Teo. I have found this to be true in my own life. It is pure wisdom taught by Jesus, Buddha, Krishna, etc. etc.???This is my commandment that you love one another as I have loved you???.Jack jack very well put?? I am learning not to always think of me and where I am at with PD, but to be thinking of others and what they need
heroteo.ikonxept.com
My Latest Story: PatientsLikeMe in NYT Magazine
Tomorrow??s New York Times Magazine has a story I wrote on PatientsLikeMe, the innovative patient community. The company, I believe, is doing some powerful things: 1 It??s making a bold call for Openness with our medical and health information, arguing that this information is more powerful out and shared and aggregated than locked up and protected. 2 It is an emerging research tool, allowing patients to gather together and consolidate their sometimes anecdotal subjective experience with d
epidemix.org
Read all posts by Stefanie Olsen in News Blog - CNet News.com Blog
There was DanceJam, for dance enthusiasts DietTV for dieters Ideeli for luxury shopping deals Mixaloo for music fans Patientslikeme for the terminally ...
www.news.com
Some health-related sites or health 2.0
1. 30 startups are presented at Health 2.0 conference. See it 2. VentureBeat on March 6, 2008 introduces ???six startups with some big, and very different, ideas for reinventing the doctor-patient relationship ?? everything from making it deeper and more convenient to practically doing away with it altogether.??? 2.1. Myca have re-envisioned the display of medical records for the digital age. ???The whole point of the interface is to show you exactly what??s going on,??? says Jay Parkinson, a young New
www.unitedbit.com
Following Up: The Web of Medicine The Brian Lehrer Show: Friday, 21 March 2008
Thomas Goetz, deputy editor of Wired magazine and contributor to the New York Times Magazine, discusses his article ???Practicing Patients??? about the issues raised by the website PatientsLikeMe for people dealing with chronic illnesses. The piece will appear in the 3/23 issue of the magazine.
www.wnyc.org
Social network wars are over
From the always perceptive Paul Gillin: Social Network Wars are Over. If you??re sitting on the sidelines waiting for the market to pick winners in the social network race, you can stand up now. Hitwise data for 2007 shows that MySpace and Facebook together accounted for 88% of all visits to social network sites. The next closest competitor, Bebo , got a little more than 1% of the traffic. There simply is no more competition in the general-purpose social network market. Other social m
www.socialmedia.biz
I have never met a braver person in my life
Sunday, March 9, 2008 I have never met a braver person in my life????????.and that includes my dad as he battled PD and pulmonary problems. My heart goes out to you my arms would love to hold you and take away some of your inner grief my prayers are for you my hope is for the rest of your life to be peaceful and happy. May I use your story as an educational tool for our ??speading awareness??? If your story does not explain what PD is and how it affects our lives, there is no explanation. I KNOW h
heroteo.ikonxept.com
New social networking for the ill dubbed ???Myspace for the afflicted???
A new social networking site looks a lot like Myspace, but is specifically designed for people suffering from major medical problems. I found the site, patientslikeme.com, after reading an article critiquing the site, by New York Times writer, Thomas Goetz. Goetz writes about one man suffering from MS who used the site to see what kinds of treatments other MS patients were taking and in doing so found out that something his doctor told him about the maximum dosage of a drug he was taking, may n
psychcentral.com
PD shall have a cure?
The researchers are working very hard to find a cure. The people in the US are petitioning for more allocation for research. PD shall have a cure. The day may not too far away? It is not dream but soon will be a reality.But when? I believe you are right and we can not and should not give up. Mark this post as helpful Yes, I can smell it right around the corner. Thanks to orgs. like PLM and MJFF.Jack There is no better time so far since PD was named and discovered to have PD if you have to
heroteo.ikonxept.com
Practicing Patients - New York Times
Small would have continued just as he was had he not logged on last June to a Web site called PatientsLikeMe. He expected the sort of online community he??d ...
www.nytimes.com
New social networking for the ill dubbed ???Myspace for the afflicted???
A new social networking site looks a lot like Myspace, but is specifically designed for people suffering from major medical problems. I found the site, patientslikeme.com, after reading an article critiquing the site, by New York Times writer, Thomas Goetz. Goetz writes about one man suffering from MS who used the site to see what kinds of treatments other MS patients were taking and in doing so found out that something his doctor told him about the maximum dosage of a drug he was taking, may n
psychcentral.com
Practicing Patients
PatientsLikeMe, an Internet start-up, creates information-rich communities for the chronically ill. Is it the next step forward in medical science ? or just a MySpace for the afflicted? More...
www.featherish.com
Practicing Patients - StarNewsOnline.com
Small would have continued just as he was had he not logged on last June to a Web site called PatientsLikeMe. He expected the sort of online community he??d ...
www.starnewsonline.com
IS PD a ???No Hope??? illness?
Despite vast improvement in PD treatment there are many reasons that some patients are still plain ignorance. They consider PD to be ???no hope??? illnessand whither away slowly. they lack of fighting spirit born fighter as they cannot accept the fact they cannot live a normal life as other healthy people. They feel embarrassed and isolate themselves from the community as some people in the society regards PD as being??? crippled???. I don??t think it is fair to say people lack a fighting spirit or
heroteo.ikonxept.com
New York Times on PatientsLikeMe.com
But PatientsLikeMe seeks to go a mile deeper than health-information sites like WebMD or online support groups like Daily Strength. The members of PatientsLikeMe don??t just share their experiences anecdotally they quantify them, breaking down their symptoms and treatments into hard data. They note what hurts, where and for how long. They list their drugs and dosages and score how well they alleviate their symptoms. All this gets compiled over time, aggregated and crunched into tidy bar graphs
davidrothman.net
A sudden surge of interest in old disease and publicity?
Parkinson is an old disease since eighteen century.Why parkinson??s disease is still a subject to discuss? Why a sudden surge of interest and publicity in the world? this post was last edited by teokimhoe on Jan 24, 2008 07:09AM It seems like more and more people for whatever reason are getting this crazy disease, and it is about time we start to get some attention like other diseases such as breast cancer so that we too can get funding for research??Shoot I don??t think we get half the attenti
heroteo.ikonxept.com
PatientsLikeMe
Hi Teo Kim Hoe, Thank you for contacting PatientsLikeMe! We greatly appreciate the compliment and truly hope that you find the site beneficial. If you ever have any questions or if there??s anything we can do for you, please let us know. We??ll be more than happy to help, and we thank you for being here.Sincerely,Sharry and the PatientsLikeMe Team On Mar 07, 2008, Teo Kim Hoe <tkh1234streamyx.com> wrote:> > > ?The best media to express how the PD affecting your lifestlye and co
heroteo.ikonxept.com
Is it the cure of drug the beginning or the end of life?
Some patients leave their PD to the doctors and drugs for treatment. Is it the cure of drug the beginning or the end of life? hummm an interesting question and a good one like quality vers quanity.. i guess there is really no right or wrong answer just a personl perference. so what do i think?? i think that sometimes the drugs can make one worse or even lead to deaths. espicallly if u have more than one dr and one dr does not know what the other has scribed and they start to interact and on
heroteo.ikonxept.com
Social Network Wars are Over Now the Fun Begins
If you??re sitting on the sidelines waiting for the market to pick winners in the social network race, you can stand up now. Hitwise data for 2007 shows that MySpace and Facebook together accounted for 88% of all visits to social network sites. The next closest competitor, Bebo , got a little more than 1% of the traffic. There simply is no more competition in the general-purpose social network market. Other social media winners include LinkedIn which wasn??t included in the Hitwise data, YouTu
www.paulgillin.com
Is PD a reason to be single?
skip to main skip to side Sunday, March 9, 20 There are 15% of PD patients who are diagnosed to have PD before the age of 40 years, some of them still be single. Therefore marriage is a very delicate issue in PD. It is a tough decision to make. Teo, the perspective on marriage is very cultural and very complex. It is not clear if you are referring to sexual problems or the need to be cared for physically. Neither should be a hindrance if two people are truly in love. It is true they
heroteo.ikonxept.com